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What Is CF? X close ABOUT CYSTIC FIBROSIS Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. Role of Genetics in CF CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care. CF Genetics: The Basics CF Mutations Video Series Find Out More About Your Mutations Personalized Medicine Types of CFTR Mutations DIAGNOSIS If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions. TESTING FOR CYSTIC FIBROSIS Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center. Carrier Testing for Cystic Fibrosis CFTR-Related Metabolic Syndrome (CRMS) How Babies Are Screened in IRT-Only vs. IRT-DNA States Newborn Screening for CF Sweat Test Life With CF X close Caring for a Child With CF Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care. CF Infant Care PARENT AND GUARDIAN GUIDANCE Working With Your Child’s School Individualized Education Programs (IEPs) and 504 Plans School Transitions for People With CF and Their Families When There’s More Than One Person With CF in the Same School Daily Life Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care. Adult Guide to Cystic Fibrosis CF and School For Teachers Managing My CF in College CYSTIC FIBROSIS-RELATED DIABETES Emotional Wellness Procedural Anxiety Substance Misuse Depression Coping While Caring for Someone With Cystic Fibrosis Anxiety Working With Your Care Team Fitness and Nutrition Fitness Nutrition and Your Digestive System Germs and Staying Healthy CF and Coronavirus (COVID-19) How Can You Avoid Germs What Are Germs? Traveling With CF Preparing to Travel In Transit and at the Destination Special Considerations While Traveling Abroad Transitions People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life. Managing My CF in College Accommodations for College Scholarships and Financial Aid Reproductive Health and Fertility Contraception and Protection How Does CF Affect the Female Reproductive System? How Does CF Affect the Male Reproductive System? Sex and CF: Some Practical Advice Family Planning and Parenting With CF Making Your Family Planning Decisions Pregnancy and CF Alternative Ways to Build a Family Parenting as an Adult With CF Colorectal Cancer and CF About Colorectal Cancer Preparing for a Colonoscopy When You Have CF What Happens After My Colonoscopy? Treatments and Therapies People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options. Airway Clearance Active Cycle of Breathing Technique Airway Clearance Techniques Autogenic Drainage Basics of Lung Care Chest Physical Therapy Coughing and Huffing High-Frequency Chest Wall Oscillation Positive Expiratory Pressure Clinical Trials Clinical Trials 101 What to Consider When Joining a Clinical Trial After the Clinical Trial: What’s Next? Lung Transplantation Being Referred and Evaluated Surgery, Recovery, and Life Post-Transplant Waiting for the Transplant What Is a Lung Transplant? What to Consider Regarding a Lung Transplant Medications Antibiotics Bronchodilators CFTR Modulator Therapies Mucus Thinners Nebulizer Care at Home Vascular Access Devices PICCs and Ports Partnerships for Sustaining Daily Care More Than Taking Medications The Partnerships for Sustaining Daily Care Initiative Treatment Plan CF Care Center Visits Managing Your Treatment Plan Partnering With Your Care Team Trikafta Care X close Care Centers Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis. CF CARE CENTER finder We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF. Clinical Care Guidelines The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices. Age-specific Care Guidelines Adult Care Clinical Care Guidelines Infant Care Clinical Care Guidelines Management of CRMS in First 2 Years and Beyond Clinical Care Guidelines Preschool-Aged Care Clinical Care Guidelines CFTR Modulator Therapy Care Guidelines Diagnosis Care Guidelines CF Diagnosis Clinical Care Guidelines Newborn Screening Clinical Care Guidelines Sweat Test Clinical Care Guidelines Infection Prevention and Control Care Guidelines Allergic Bronchopulmonary Aspergillosis Clinical Care Guidelines Eradication of Initial P aeruginosa Clinical Care Guidelines Infection Prevention and Control Clinical Care Guidelines Nontuberculous Mycobacteria Clinical Care Guidelines Nutrition and GI Care Guidelines Colorectal Cancer Screening Clinical Care Guidelines Enteral Tube Feeding Clinical Care Guidelines Nutrition in Children and Adults Clinical Care Guidelines Nutrition in Pediatrics Clinical Care Guidelines Pancreatic Enzymes Clinical Care Guidelines Vitamin D Deficiency Clinical Care Guidelines Other CF-related Conditions Care Guidelines Bone Disease in CF Clinical Care Guidelines Cystic Fibrosis-Related Diabetes Clinical Care Guidelines Liver Disease Clinical Care Guidelines Respiratory Care Guidelines CF Airway Clearance Therapies Clinical Care Guidelines Chronic Medications to Maintain Lung Health Clinical Care Guidelines Lung Transplant Referral Guidelines Pneumothorax and Hemoptysis Clinical Care Guidelines Pulmonary Exacerbations Clinical Care Guidelines SCREENING & TREATING DEPRESSION & ANXIETY GUIDELINES Best Practices in the Management of the Gastrointestinal Aspects of CF Clinician Resources As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care. Clinician Awards Clinician Career Development Awards Clinician Training Awards Mutation Analysis Program Network News Network News: February 2020 Network News: NACFC 2019 Network News: August 2019 Network News: May 2019 Network News: Previous Issues Partnerships for Sustaining Daily Care As part of the Cystic Fibrosis Foundation’s mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care. MORE THAN TAKING MEDICATIONS The Partnerships for Sustaining Daily Care Initiative Success With Therapies Research Consortium Your CF Care Team Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care. Assistance Services X close About Compass Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes...